Lupus Archives

Sleep, Sleep and More Sleep

Mr. Sandman, LEAVE ME ALONE

From time to time, I go through these periods where I just cannot stay awake. The last week or so has been like that. Yesterday I got up around 7 or 8am. Later I went back to sleep and slept until around 5:30PM. I really don’t like this pattern when it hits. Right now I’m very sleepy as I type this.Cant Stay Awake.

I have been resisting it on many of the days. Drinking coffee to stay awake. Sometimes that didn’t work either. I always blamed it on lupus but the doctor said people don’t usually go to sleep with lupus. I asked some of my lupus friends and they said yes, it happens to them. One called it a coma sleep. I prefer to call it the zombie sleep.

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The Finger

Playing Doctor Again So I’ve had these strange things going on with my fingers for the last several months. I know I need to go to the doctor and I will. You have to understand how sick of going to doctors that I am. At one point, I was seeing seven doctors, visiting them every…

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Feeling Better

Lupus Recovery Day and Education for Those not Afflicted

Jessie had been predicting I was going to have a rough few days. It is not uncommon for me to wilt like an octopus out of the water once I’ve had a few days, or even a day of fun, especially if the fun was in the sun. My hair lost its red because I stopped going into the sun, one of my high school friends noted that when we re-connected last week. That is because the sun made me sick. As a kid, a hard day of play in the sun left me with strep throat the next day on several occasions.

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Lupus And The Brain

CNS LUPUS

Lupus is a disease where a persons immune system becomes confused and attacks their own healthy tissue. It can range from mild to deadly. Most people are some place in the middle, at least for most of their illness.

The treatment for lupus is by use of medications that have their own severe side effects. This includes steroids (not the type that athletes take) that cause damage in more ways that I know but one is weight gain and damage to muscles. Doctors also mentioned arteries.

Not Feeling Well Today

Had a fever earlier today, feel like its worse now but Jessie’s hands feel warmer than my forehead so I suppose I don’t.   Sure feels like it.  My face burns as if I have a sun burn but I didn’t go out during the day yesterday.  I did go down to the BBQ by the…

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