No doctor has diagnosed it yet but I know I have it. I just fond this website: http://www.lef.org/protocols/immune_connective_joint/scleroderma_01.htm This is me. I’ll likely write more about it soon. Jessie is sick of me being sick. I’m feeling pretty much alone right now. I felt the same way when lupus was diagnosed. Oh well, I’m really very strong though I have my setbacks I bounce back. I’m a survivor and I will continue to do just that. I spoke to the doctor about it last week. He seemed to think it was possible and is considering running test for it based on the blood test I will have in a few days. I don’t need the test as I know what is coming.
- Thickening of the skin (90 percent) (YES)
- Swelling of the hands and feet (Yes)
- Pain and stiffness of the joints (30 to 50 percent) (Yes)
- Joint contractures (fingers curling up, difficulty of movement) (No)
- Raynaud’s phenomenon (70 to 90 percent) (Yes)
- Gastrointestinal tract problems (90 percent) (Yes)
- Sjögren’s syndrome (dry mucus membranes) (Yes)
- Facial problems (tightening of skin, limiting mobility of mouth and eyelids; temporomandibular joint syndrome, or pain in the joint of the jaw) (Some of this)
- Dental problems (change in bite; loosening of teeth because of collagen deposition, increasing the size of the ligaments around the teeth; tooth sensitivity) (Yes)
- Fatigue attributable to fibrosis in the heart muscle (Hope not — doctors found possible scaring in heart but were not sure)
- Generalized aching and weakness caused by fibrosis in the muscles (20 percent) (yes but don’t know cause)
- Kidney, heart, and lung involvement (Lots of lung problems in the last couple of years and all my life too)
Tagged with: Lupus • Scleroderma
Filed under: Scleroderma
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Hey Rusty, Hang in there. You may feel alone, but your not.Where here for you. The bottem line is you have to take care of yourself, know one can do it for you.Your health is the first thing you have to deal with, everything else is second. JC
Thanks JC.
Like lupus, test alone do not diagnose sclreoderma but rather history does.
eat healthy… take vitamins… dont skip taking medicine……have faith and live life to the fullest… tc
Lately I was wondering why you are not active on your website. Sickness (Lupus) crossed my mind several times but I guess I did as all humans tend to do; ignore it and try to forget it.
Now I do understand and would like to express my sympathy to you, to your wife and children. When it hurts,… it hurts, and the whole family suffers. Hopefully one day the humanity will be free from sicknesses and the f****** pain.
Rusty, just try to remember that nobody but your Filippina wife will faithfully carry you through this. So be nice to her.
Take care buddy.
Robert, I just don’t write on this site too often. I have another site I’m very active on. http://cebuexperience.com I’m fine. I’m use to have chronic illnesses. It isn’t that big of a deal to me any more except when it hurt. :)
We all have some kind of ailment that will manifest itself sooner or later, so in a way, we are all in the ‘same boat’. You are not alone.
Hi Rusty and Jessie. Do you have a blender-liquidiser gadget? You could blend down lots of fresh organic fruit and also green veg items. Keep jars of that really cold in the fridge and take small portions all the time. And a good mineral and vitamin one-a-day supplement. Worth the trouble, helps give your system whatever it might need to put itself right, fight disorders off. Have a good Christmas.
No, don’t have one but it is in our plans. :)
Great, kinda fun too, being a gadget-toy-item that makes a noise and does stuff. There’s a lot of information online about health properties in ordinary foods that hasn’t been publicized much through lack of profit motive. For instance the SKINS of quite a few fruits but that’s where the ‘organic’ part comes in, because of insecticides and whatever, you can clean those skins but that stuff tends to have penetrated the surface a bit, so organic is the best. Or home-grown even better.