Archive for 'Lupie'

Feeling Better

Lupus Recovery Day and Education for Those not Afflicted

Jessie had been predicting I was going to have a rough few days. It is not uncommon for me to wilt like an octopus out of the water once I’ve had a few days, or even a day of fun, especially if the fun was in the sun. My hair lost its red because I stopped going into the sun, one of my high school friends noted that when we re-connected last week. That is because the sun made me sick. As a kid, a hard day of play in the sun left me with strep throat the next day on several occasions.

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Lupus Fog

Lupus Fog Today

I am a lupian or I am lupie (maybe spelled luppie). These are terms people with systemic lupus erythematosus (SLE) call themselves. Partly as a way to poke fun at the illness.

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